Well seems like a good time to circle the wagons and update my latest adventure...
First, someone is always worse than you...
We pull into Hopkins and this adorable little girl with her hair in 10 braids and clips was jumping out of her car seat in the handicap parking spot. In her bright pink coat with cozy green scarf... We became fast friends in the waiting room, her name is Sarah with an "h" and she is four and was breathtaking. She had this awesome kid tablet that made kitty cats, hopping frogs and poodles. She even corrected my grammer once...
Sister Teresa would have loved this child! I can only make assumptions as to why a healthy looking beauty would have a handicap sticker and need to be at Hopkins... But the look of worry on her mom's face told me it wasn't for the cool yellow wristbands all the patients got.... So pray for little Sarah, she stole a piece of my soul... But let's be real, I gave it willingly...
So that said, after saying good-bye to Sarah and getting my vitals done, we got cozy in another cold exam room and waited for one of the revolving door fellows... But that didn't happen, we got the big dog, he just rolled in and sat down and we got to work...
He acknowledged that the magic shot has failed me and that it was time to discuss additional therapies. Now I'm the first to say our first encounter was not a love connection; but he won me over this time, he is the guy, he knows it all about my condition. Hopkins wants to send me back to NIH to make a new friend who specializes in an area that makes my condition unique, so we give him props.
He also gets that the other Docs on my team are invested in me... He liked that and appreciated their concern.
So the new year brings a new scary drug therapy that gets 4 weeks to work and another field trip to NIH...
A new fork in the road... We will see where this new one takes us...
Namaste
First, someone is always worse than you...
We pull into Hopkins and this adorable little girl with her hair in 10 braids and clips was jumping out of her car seat in the handicap parking spot. In her bright pink coat with cozy green scarf... We became fast friends in the waiting room, her name is Sarah with an "h" and she is four and was breathtaking. She had this awesome kid tablet that made kitty cats, hopping frogs and poodles. She even corrected my grammer once...
Sister Teresa would have loved this child! I can only make assumptions as to why a healthy looking beauty would have a handicap sticker and need to be at Hopkins... But the look of worry on her mom's face told me it wasn't for the cool yellow wristbands all the patients got.... So pray for little Sarah, she stole a piece of my soul... But let's be real, I gave it willingly...
So that said, after saying good-bye to Sarah and getting my vitals done, we got cozy in another cold exam room and waited for one of the revolving door fellows... But that didn't happen, we got the big dog, he just rolled in and sat down and we got to work...
He acknowledged that the magic shot has failed me and that it was time to discuss additional therapies. Now I'm the first to say our first encounter was not a love connection; but he won me over this time, he is the guy, he knows it all about my condition. Hopkins wants to send me back to NIH to make a new friend who specializes in an area that makes my condition unique, so we give him props.
He also gets that the other Docs on my team are invested in me... He liked that and appreciated their concern.
So the new year brings a new scary drug therapy that gets 4 weeks to work and another field trip to NIH...
A new fork in the road... We will see where this new one takes us...
Namaste