Below are my Eating Disorder related blog posts. To start, you may want to read this article I wrote for the Washington Post about my daughter’s diagnosis and battle with anorexia, “She was 11, with an eating disorder. It took her mom to figure it out.”
You are right to see me as fierce and unwavering. The Kathryn you encounter is the risen phoenix, the one who emerged from the ashes, reborn and full of life. She is unshakable in her protection of her children.
I have not always been this woman. As humans we are a messy bunch. Who we become is based on countless experiences, all of which define us. Even though I appear as a fierce protector, I still have my own daily struggles and anxieties which can limit aspects of my life.
Prior to Norah’s anorexia diagnosis, pesto was her favorite food. When asked to pick dinner, she would sparkle, Pesto pasta Mom! Norah not only loved to eat it, but she also relished her role as kitchen apprentice. With painstaking detail, she would wash the basil, pinch the stems, and graciously step into her position as official pine nut taster. I left it to Norah to decide if the nuts were perfect or needed to be, Just a bit toastier.
When you have a child with an eating disorder, you don’t have the option of sitting on the sideline, you get in the game and do what you have to do to get them well. So, if you are a DAD not buying into the eating disorder treatment of your child, all I can tell you is, GET OVER IT and GET WITH THE PROGRAM!
Because the path to wellness isn’t a straight line. It zigs and zags, it is two steps forward and sometimes four back. Your goal is to have more good days than bad. That is your metric, keep your eye on that. Hard stuff is going to happen. Every. Single. Day.
When you ask eating disorder professionals what the most common parenting worry is in refeeding their child, you get some version of this statement.
“I’m scared that this process will forever damage my relationship with my child.”
If this is your worry, I will not dismiss it. However, you do need to get past it.
I believe that there are two questions that helped us lead our daughter to recovery. And the answers to those questions are what solidifies her confidence, but it also strengthens her ability to sustain her own recovery.
What are you willing to do for your child?
What does your child believe you will do for them?
I have seen FB post after post with questions about fear foods, food lists and questions about junk food. We have tackled each of these issues at our kitchen table. I am also the first to admit that my opinions on junk food took a complete 180° after the Pop-Tart snack incident in our ED outpatient program.
As I sat drinking my coffee, I delighted as I watched Norah in the zone. Returning ball after ball. Smiling, my phone buzzed. The notification was a news alert. Weight Watchers had just announced they were rolling out a free healthy eating program for teens age 13 to 17. My reaction was visceral. My stomach dropping out of me like I was on a roller coaster.
Thanksgiving is a food based holiday and it creates a set of painful firsts for our family. The first year that anorexia will join us at the table.
Just take a moment, a particle of sand, slips into a shell, the friction, irritation, the discomfort, produces a spectacular often breathtaking pearl.
My life feels like I'm being pummeled by waves. Like the ocean tossing me as she does with the foam on the top layer of the water, in one moment plunging me forward while I try to regain my footing, I'm then thrust and uprooted by the force, the anger and rage of the undertow pulling me further from shore--and still further from my home.
Norah's doctor looked at Norah, Jeff and I and told us that the reason our bright, beautiful and until a few short weeks ago fantastic tennis girl was in the hospital was because a resting heart rate of 41 meant Norah's body was capable of having a heart attack at anytime.
There will be no brunch or champagne, no cards from my Beauties, no special flowers. However, like so many mothers throughout the country, I will wake with gratitude that I am blessed to be a mom.
This May will mark five years since Norah’s hospitalization for anorexia. As a family we have each grown, changed and healed—each of us have stories and memories. Norah was 11, in May of 2017, when she spent a month hospitalized with a dangerously low heart rate and was given a feeding tube for nutrition.
I asked Norah if she would let me interview her for this piece. She said yes. Here are her words…